Select your wallpaper: Select your wallpaper: Sign up to save your choice Close
Forum Store Donate
Ask question 2Ask a question for young adultsY16621662 people shared this0 comments

Welcome to the young adults area in the ‘ask a question’ section. Do you have any questions about Huntington’s disease that you’ve always wondered about? Well here’s your chance because HDYO has gathered a panel of Huntington’s disease experts to answer any questions you may have.

Feel free to send any questions you have using the form below and we will forward it to who we feel is the appropriate expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don’t want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section and - if you provided an email address - we will forward the answer to your email address.

If you aren’t a young adult, please be aware that this area is for questions from young adults that may not be appropriate for your age range.

Submit your question

See our answer...
If my aunts and uncle had HD could I have it?Y33 people shared this0 comments

if my aunts and my uncle on my mothers side had HD does that mean i have a chance of having HD?

Cameron, Young Adult USA

See our answer...
If my mother had HD but I don't can my baby get it?Y44 people shared this0 comments

If my mother had HD but I don’t have it, could I give it to my baby? Do you still carry the gene even if you don’t develop the disease?

Anonymous

See our answer...
I'm an identical twin and my brother won't get testedY99 people shared this0 comments

I’m an identical twin, and my brother and I are at risk for HD. Our father had it. I want to be tested, but my brother refuses. What do I do?

Levi, Young Adult, USA

See our answer...
My family seems to develop HD later, if I test positive will I?Y77 people shared this0 comments

My great nan had huntingtons disease (did not pass away until early 80’s) my nan currently has it and my my mum currently has it. I have not had the test. My nan is 67 and still lives alone with a little help from my mum but copes day to day still. My mum is 50 and although I am starting to see behavioural changes she too is doing very well. As my line of family seem to develop the disease a lot later does this mean if I tested positive I would be more likely to develop the disease at a later age?

Charlotte, Young Adult, UK

See our answer...
How predictive is age of onset from previous generations?Y1111 people shared this0 comments

My boyfriend is positive for the HD gene. His grandmother was diagnosed in her 70’s. His mother is also positive for the gene. She is 60 and showing no symptoms yet with a count of 40. How predictive is age of onset from previous generations? Does this mean he may not present until later in life since that seems to be the trend in his family history?

Melissa, Young Adult, USA

See our answer...
My dad has 27 CAG repeats, what are my chances?Y1212 people shared this0 comments

My dad got his results back to and got the all clear but he scored 27 on the test what is the chance I will get it

Ashley, Young Adult, UK

See our answer...
Possible postive and negatives of getting tested?Y1111 people shared this0 comments

My mother and grand mother have Huntington disease. I’m really wondering what the possible positive and negative effects may be if I get tested. Thanks

Scott, Young adult, Canada

See our answer...
Can kids be tested?Y3030 people shared this0 comments

My father was diagnosed with a count of 38 and I also have the same count. Dad is now 75 and not really showing any signs I have since had 2 girls who are aged 5 and 6. My wife is now very worried for our daughters. Can kids be tested? Or is this up to each individual once they are 18?

Jason, Adult, Australia

See our answer...
Will I get earlier onset than my dad?Y3232 people shared this0 comments

My dad was recently diagnosed with late onset hd. He is pre-symptomatic and 60. I am aware that the disease often gets worse passed from father to children. Is there any data regarding how often anticipation occurs? Would a longer cag repeat length than his tell me whether I would be earlier onset than him? Thanks!

Julianna, Young Adult, USA

See our answer...
Will my brother get symptoms at the same age as my parents?Y3535 people shared this0 comments

My grandma,aunt and father have HD I’ve been tested and I don’t have it….my brother chooses not to be tested for his own reasons he is 27 years old. …. my dad showed signs at 35 same as my aunt and grandma.. I was wondering if my brother does have it, will he start showing symptoms at the same time as my other family members or does each person show at different times?

Aimy

See our answer...
Can you be a carrier without any symptoms?Y3030 people shared this0 comments

Is it possible to carry the HD gene but never show any symptoms?

Lewis, Young Adult, Australia

See our answer...
I have HD and am pregnant, will the baby get it?Y2828 people shared this0 comments

If I’m pregnant and I have huntingtons and the father does not will the baby have huntingtons?

Anonymous, Young Adult

See our answer...
My mom got HD without anyone in her family having itY2222 people shared this0 comments

No one in my family had HD, but some how my mom got it. Is there any way to developer this disease without it being passed down?

Jasmine, Young Adult, USA

See our answer...
Mum's CAG repeat is 30 - how are her children affected?Y2323 people shared this0 comments

Hello! My aunt passed from huntington’s several years ago even though it appeared that neither grandparent (gma passed at 75 and gpa passed at 86 of natural causes and heart disease) had it….

Sarah

See our answer...
What percentage of people fall into the gray area?Y3333 people shared this0 comments

What percentage of people tested fall into the ‘gray area?'  either with reduced penetrance or intermediate?  Is it very common?  Thank you?

Sarah, Young adult

See our answer...
Can paranoia be the first symptom of HD?Y2525 people shared this0 comments

Hello. My husbands father has HD, and my husband does not want to be tested. He is now approaching the age of 40 and have no visible symptoms. However, I think he is showing some paranoia or at least extremely careful behavior concerning electronic devices and fear of being watched somehow….

Anonymous, Young Adult

See our answer...
Do gene silencing treatments look promising?Y2222 people shared this0 comments

My friend (30) recently found out that he carries the mutated gene, so I have been trying to do some research about potential treatment possibilities and how the future looks.. Do gene silencing treatments look promising (as of 2016)?…

Preben, Young Adult, Denmark

See our answer...
If neither of my parents have HD can I get it?Y2424 people shared this0 comments

Hello, I was wondering if neither of my parents nor grand parents had Huntington’s disease is it possible for me to have it?

Rodney, Young Adult, USA

See our answer...
My grandma and dad had HD, do I?Y3333 people shared this0 comments

My grandma had hd and was bed ridden and passed at 50 i believe.she had 4 kids my dad (56)bed ridden and my aunt (40) deceased got hd my aunt had 2kids one has hd one doesnt ….

Robert, Young Adult, USA

See our answer...
Is it almost 100% that my friend or her brother will have HD?Y2929 people shared this0 comments

One of my friends dad just recently died from Huntingtons disease. My friends mom was not infected but her dad obviously was. Her parents had two children, is it almost possible that her brother or my friend will 100% chance have the disease?

Shelia, Young Adult, USA

See our answer...
What does a positive allele for HD mean?Y5050 people shared this0 comments

My mom has paper work that she showed a + allele for huntingtons. What does this mean?

Leanne, Young Adult, USA

See our answer...
Can you have the mutant gene but not get HD?Y5454 people shared this0 comments

Is it possible to carry the mutant gene and not to suffer from the disease?

Jose, Young Adult, Colombia

See our answer...
My great-aunt has HD, am I at risk?Y3939 people shared this0 comments

My great-aunt has Huntington’s Disease, I know each case is different but it seems like my grandmother is starting to show the same symptoms, she is showing a grand memory loss over the years, am I at risk of carrying this gene?? Thank you for having this space for questions.

Felipe, Young Adult, Brazil

See our answer...
What age is it safe to say you don't have HD?Y4242 people shared this0 comments

My mother refuses to get tested for HD because she’s afraid. She is now in her 50’s and shes fine, by what age is it a safe age to say that she doesn’t have it?

Stacey, Young Adult, USA

See our answer...
Can a child have HD if their parents are over 50 without symptomsY4141 people shared this0 comments

Hi there i wanted to know, since HD is a autosomal dominant gene. Can one (an offspring) have it without parents having any symptoms they have HD when they are both well into their 50’s?

Michelle, Young Adult, USA

See our answer...
Do both parents have to be carriers to pass it on?Y4040 people shared this0 comments

Do both parents have to be carriers of Huntington’s disease to pass it on to a future child?

Anonymous, Young Adult

See our answer...
I have 42 repeats, my dad had 40 - what does that mean?Y4343 people shared this0 comments

Hello I have not long found out that my father has inherited hd from my grandmother, my father is now 50 and he’s repeat on the scale is 40. Once I found this out I got myself tested and it came back positive my score on the scale was 42. So does this mean I will get symptoms earlier and maybe more severe than what he has? I do not really understand the scale side of things….

Tanya, Young Adult, UK

See our answer...
My grandad got HD in his 50s - could my mum and I have it?Y5252 people shared this0 comments

Hi. My grandad died of HD in his 50’s. He and my grandmother had 5 children. 2 of their sons (my uncles) developed the disease in their late 20’s and died, and one of their daughters (my auntie) developed it in her 30’s and has also passed away. My mum is now 64 and symptom free. What are the chances that she is a carrier and could develop late-onset Huntington’s? And if she is a carrier and has passed on the faulty gene to me, would it also be a late-onset form of the disease, or is the CAG count random and in no way liked to the family history? Thank you in advance.

Laura, Young Adult, France

See our answer...
Can HD be similar to autism?Y3939 people shared this0 comments

Hello! Do you know whether early or prodromal HD can manifest as similar to autism? I have the HD gene and have been diagnosed with autism and my psychiatrist thought that might be the case and is in the process of referring me to a neuro psychiatrist to try to find out. I was wondering. Thanks for your help.

Brandy, Young Adult, UK

See our answer...
My aunt has HD, is there I chance I do?Y3636 people shared this0 comments

Hi! I have an aunt who was diagnosed with HD a couple of years back. Neither my grandmother, my grandfather (both over 75 y/o) or my mother (55 y/o) are showing any symptoms and as far as any of us know, there haven’t been any other known cases in my family. Could my aunt still have inherited it from my grandparents, and is there still a chance I’m at risk of developing HD?

Mirjam, Young Adult, Norway

See our answer...
My dad only got symptoms at 50, will I get them late as well?Y3232 people shared this0 comments

My dad starting showing hd symptoms at 50. I carry the gene does this mean I won’t get it until later in my life as well or can I show symptoms young even though his were older?

Mary, Young Adult, Australia

See our answer...
My mother did not have the gene, can I?Y2828 people shared this0 comments

My grandmother died of H.D my mother was tested and did not have the gene. Can I or my daughter still have the defective gene?

Alison, Young Adult, UK

See our answer...
My grandmother's brothers have HD, will I?Y2626 people shared this0 comments

4 of my grandma’s brothers are HD affected. She is showing up to now only major depression symptoms. are high the chances my father and I will be affected by HD?

Madalica, Young Adult, Italy

See our answer...
My aunt has HD, could I have it?Y2929 people shared this0 comments

One of my aunts is suffering from HD, she is the sister of my mum. My mum is already 50 years old and I wonder if I could had inherited?

Carlos, Young Adult

See our answer...
My grandma had HD, my father doesn't, can I?Y4040 people shared this0 comments

My grandma had hd and had 3 boys 2 of which are and were hd my father does not have hd can me or my children have hd

Carrie, Adult, USA

See our answer...
My dad has HD. What are the odds I will?Y3636 people shared this0 comments

My dad has hd. My older sister and brother have signs of it. Me and my other older sister don’t not yet anyway. I look and act exactly like my mom. I’m very organized and have s good memory what are the odds I will have it?

Caitlin, Young Adult, USA

See our answer...
My auntie had HD but my father doesn't could i have it?Y2828 people shared this0 comments

My auntie had HD but my father doesn’t could i have it?

John, Young Adult, UK

See our answer...
My father doesn't believe HD is in the familyY3333 people shared this0 comments

My father completely rejects the identification of the HD gene (for which he has been tested twice in 2 different labs) and the diagnosis of onset. For the last 6 years, every attempt we and the doctors have made to convince him has failed. I don’t think he is in denial but that he lacks insight. He genuinely believes that the doctors have withdrawn their conclusions, which is a lie. When asked “What would it take for him to believe that HD is in the family?” His reply is “Nothing”. Do you have any advice on how we can help him to stop believing a lie and see the truth? Because until he accepts it, we or the doctors cannot help him.

Tim, Young Adult, UK

See our answer...
What is Huntington’s disease?Y3131 people shared this0 comments

What is Huntington’s disease?

Mahendra, Young Adult, Nepal

See our answer...
HD passes from father to daughters in my family?Y3434 people shared this0 comments

Hi, I have a question about HD transmission, my grandmother has the disease. In our family, my grandmother’s father had the disease and he had 1 son and 5 daughters, the man didn’t got the disease, but the 5 daughters had, this means that the disease passes from the father to the children that are women and from the mother to the children that are men?

Wellington, Young Adult, Brazil

See our answer...
Is it possible to get tested with no symptoms?Y4141 people shared this0 comments

My dad was diagnosed with Huntingtons disease at 29 years old, he’s now 47 and refusing to eat or drink, he just stares into thin air and can barely talk :( it’s so heartbreaking and I’d like to know if it’s possible to get tested even though I have shown no symptoms as my dad was diagnosed young

Monica, Young Adult, N. Ireland

See our answer...
If a mother has the gene is the son's chance 50-50?Y4343 people shared this0 comments

Hello there.. Love this site, very informative but I have friend actually who asked if I could do research for her on this diseases because he may have a chance of having it. So my question is if his (my friend’s) mother has the gene and shows signs of the disease but the father does not carry the gene will my friend have a 50-50 chance of having it or is it more or less likely that his sister carries it? Can he carry the gene but never show symptoms?

Heather, Young Adult, USA

See our answer...
I'm 31, fit and healthy - am I still at risk?Y268268 people shared this0 comments

Hi, my mother, grandmother and uncles had HD. I’m 31 years old now, I’m very healthy and active, both physically and intellectually. I would like to know if I’m still at risk for HD? I have two children, one is 5 years old and the other is 3 months old. If I don’t have the gene mutation, they will not have it either? Two years ago I did several exams, I did a brain scan, and it didn’t find any lesion. Can I be at ease with this?

Pamela, Young Adult, Brazil

See our answer...
Is there feedback from the gene silencing trial?Y4242 people shared this0 comments

Hi I have recently tested gene positive I was wondering if there any feedback from the gene silencing trials trying to remain hopeful

Sheree, Young Adult, Australia

See our answer...
What is the average age for symptoms to show? Is there a cure?Y5757 people shared this0 comments

My grandad died of huntingtons disease about 4 years ago, my mother today i’m unaware if she has it but i know she hasn’t and doesn’t want to be tested but before i’ve heard her mention things before which makes me think she might have it starting, i know her sister has it and it makes me wonder if i have it and what is the average age for the disease to start really showing symptoms and is there a cure for it yet?

Holly, Young Adult, UK

See our answer...
Is it possible no children will inherit HD?Y154154 people shared this0 comments

My mother is 55 years old and has HD from the last 16 years, we are three siblings, I am aware that every child has a 50:50 chance of inheriting this disease but have you ever came across a family where not even one child inherited it?

Ayesha, Young Adult, Pakistan

See our answer...
My mom has stopped eating, what should I do?Y6969 people shared this0 comments

My mom has Huntington since 15 years, she is completely bed ridden, since few days she has stopped eating anything, what should i do?

Khadija, Young Adult, Pakistan

See our answer...
Can a 2 month old baby have HD?Y372372 people shared this0 comments

Is it known for a 2 month old baby to have HD?

Ronda, Young Adult, USA

See our answer...
How can we help my mum have a good sleep overnight?Y5858 people shared this0 comments

Hello, my mum has been suffering from Huntington’s chorea for six years and she’s just started to have serious sleeping problems – she gets up every 10 minutes at night to go toilet (even though she doesn’t really need to…). She takes medicines daily Haloperidol… What can we do to help her having a good sleep overnight?

Katarzyna, Young Adult, Poland

See our answer...
If my uncle has HD and my mother doesn't can I get it?Y4040 people shared this0 comments

If my uncle has huntingtons disease and my mother doesn’t…can she still be a carrier and pass it on to me??

Kellie, Young Adult, USA

See our answer...
Does age at conception affect passing on the gene?Y151151 people shared this0 comments

My grandfather had HD and my father, who is in hos mid 40’s is showing signs of it. I was conceived when my father was only 16 years old. Does his age at conception affect the possibility that I may or may not have the HD gene?

Natalia, Young Adult, USA

See our answer...
My grandparents didn't get HD but their children didY6262 people shared this0 comments

3 out four children of my grandparents developed Huntington disease, but neither of them had shown any symptoms. I was wondering Since Huntington is dominant allele genetic disorder, how my aunts and uncle developed it from both healthy parents?

Pelareh, Young Adult, Canada

See our answer...
How aware are people on sedatives?Y7373 people shared this0 comments

Good morning, I actually have few questions… My mum is 65-year-old and was just diagnosed with HD… Quite late… Mum is still able to walk and take care of herself. She takes some medicines. Does a person taking some sedatives/tranquilizers haloperidol understand they are suffering from HD? Are they aware of what is happening/going on around them?…

Kinga, Young Adult, Poland

See our answer...
Are outbursts common even before diagnosis?Y259259 people shared this0 comments

My mother in law was diagnosed 2 years ago and I’ve known her for 7 years and knew there was a problem but no one was sure. She was the kindest most generous women but she would have these raging outbursts that didn’t make sense. Is that common for huntingtons even before diagnosis?…

Jolene, Young Adult, USA

See our answer...
Is care free for people with HD?Y7070 people shared this0 comments

Is care free for people with Huntington’s disease?

Anonymous, Young Adult

See our answer...
Does HD cause people to sleep a lot?Y8080 people shared this0 comments

Does Huntington’s cause the person to sleep a lot?

Carol, Young Adult, USA

See our answer...
Can I have my adopted son tested for HD?Y6262 people shared this0 comments

My son is adopted and his grandmother and great have it can I have him tested without their consent?

Anonymous, Young Adult

See our answer...
Should my fiance be tested even though it only seems to affect women in his family?Y141141 people shared this0 comments

Q. My fiance’s mother had HD and passed away about 9 years ago… If he were to test positive can he pass it on to our children?

Meagan, Young Adult, USA

See our answer...
Is there a grey area in prenatal CVS testing?Y5757 people shared this0 comments

Q. With prenatal CVS testing - is there a CAG count of the foetus where you DON’T have to terminate (eg between 36-39 the ‘grey area’ or 27-35)?

Sonnie, Young Adult, Australia

See our answer...
What is the relationship between repetitions and onset age?Y147147 people shared this0 comments

Q. My dad has 42 repetitions. What is the probability that the repetition increases if I have the HD gene?

Karla, Young Adult, USA

See our answer...
Will I have more repeats than my mother?Y5656 people shared this0 comments

Q. My mother has HD and her genetic test shows 40 repeats. If I’ll have the condition, can I have more repeats than she has or will it be the same?

Fernanda, Young Adult, Brazil

See our answer...
My 3 year old son's father has HD, is he at risk?Y6666 people shared this0 comments

Q. I have a 3 year old son and have just found out that his father has been diagnosed with HD. His mother passed away 2 years ago, she also had HD and one of his sisters has it also and was diagnosed some years ago. I would like to know if my son is at risk of developing HD, and if I can have him tested to see if he does carry the gene? Thank you

Stacey, Young Adult, UK

See our answer...
Has HD stopped in my family?Y245245 people shared this0 comments

Q. My fathers mother died from huntingtons, his youngest brother, and his sister both passed from it. He is in his 60’s now no signs of it. Does that mean the disease stopped or can it skip to me his daughter or his two other sons?

Amber, Young Adult, USA

See our answer...
What if both parents have the expanded gene?Y6565 people shared this0 comments

Q. What if both parents have the expanded gene for Huntington’s disease?

Patrick, Young Adult, USA

See our answer...
Is gene silencing aiming to be a cure for HD?Y9090 people shared this0 comments

Q. I have been following the HD ‘gene silencing’ or ‘lowering’ clinical trials this year but does this represent a genuine ‘cure’ or does it, at best, represent a delay - if its the latter how many years would it delay the onset of HD?

Ashok, Young Adult, UK

See our answer...
Is there a cure? Is it hereditary?Y141141 people shared this0 comments

Q. Is there a cure for this disease? Is it hereditary?

Gaston, Young Adult, Spain

See our answer...
My grandpa had HD but my dad does not, am I at risk?Y6666 people shared this0 comments

Q. My grandpa had HD but my dad does not have it, am at at risk of getting HD.

Kyler, Young Adult, USA

See our answer...
My father was diagnosed but has no family historyY6262 people shared this0 comments

Q. My father was diagnosed about a couple of years ago, my father is 59 and the normal age for symptoms starts around 30-40 years old. No one in his family had Huntington’s. So my question is how could he possibly be diagnosed with HD if it is a genetic disease but yet no one in his family tree ever had it or ever had signs of it?

Stephanie, Young Adult, USA

See our answer...
My dad's aunt died of HD, could I get it?Y6666 people shared this0 comments

Q. My dads aunt died of HD. None of his other aunts or uncles got it. Neither him or his siblings got it. Could I get it?

Mike, Young Adult, USA

See our answer...
My grandmother had HD, could my son have it?Y7979 people shared this0 comments

Q. My grandmother died from huntingtons, i am wondering could i have it or could my kids have it ? my son started getting ticks and eye blinking at about 7 he is now 17 and has many ticks and makes noises im worried he has it.

Crystal, Young Adult, USA

See our answer...
Do I have to wait until I get signs to test?Y7070 people shared this0 comments

Q. My grandfather, aunt, uncle, father and sister all have tested positive, or show major signs of it, I’m not worried about the percentage rate, or the chances that I have it, I just would like to know, being 24, would I be able to get tested just to see if I have it, or do I have to wait till signs are present? What type of doctor should I be looking for to do the tests? Thank you

Albert, Young Adult, USA

See our answer...
Is it possible to find out if someone has the gene after they died?Y6262 people shared this0 comments

Q. My brother has received a positive gene result that he has HD. My mom is 68 years old and my dad died when he was 56 but not from any disease. I wonder if it is possible to find out after a person’s death if he or she was a gene carrier?

Annethe, Adult, Sweden

See our answer...
What exactly does the HTT gene do?Y7474 people shared this0 comments

Q. What exactly does the HTT gene do? …

Nancie, Young Adult, USA

See our answer...
Since my dad won't get tested is there any way I can?Y5555 people shared this0 comments

Q. My grandma inherited HD from her mother and she recently passed from it. My grandma has 4 children, 1 of which has been tested positive but the others do not want to know. My question is since my dad won’t get tested is there anyway I can still be tested? I have a family of my own to worry about and I don’t see how it’s fair to me and my girls not to know where my life may or may not take me with this horrible disease.

Cindy, Young Adult, USA

See our answer...
Do non-identical twins have 50% each chance of getting HD?Y196196 people shared this0 comments

Q. My partner’s mother has HD as she inherited from her mother. My partner has a twin brother (dizygotic). Do they still have 50% each for inheriting HD?

Mel, Young Adult, Greece

See our answer...
If my boyfriend doesn't have HD could our baby?Y6464 people shared this0 comments

Q. My boyfriend and I just had a baby. His grandmother has HD and his dad also. My boyfriend has not been tested and we do not know if he has it. My question is, if my boyfriend doesn’t have it, is there still a possibility that our baby could have it?

Heather, Young Adult, USA

See our answer...
Why do people with huntington's disease get so mad so easily?Y6767 people shared this0 comments

Q. Why do people with huntington’s disease get so mad so easily?

Kylee, Young Adult, USA

See our answer...
Can you modify the gene to have a baby without HD?Y5858 people shared this0 comments

Q. Hi, my mother-in-law has HD, is 60, her late father too, my husband had symptoms and is in his 30’s. We decided not to have a baby for this reason. Now someone told my husband is possible kind of “modify the gene” in the embryo/fetus to have a baby without HD, but this procedure is very expensive and not so common….is it true???

BA, Young Adult, USA

See our answer...
What do the researchers know exactly about CAG 36?Y4848 people shared this0 comments

Q. I’m really interested in scientific data about inheriting Huntington’s disease from mother who has 36 CAG repeats (father without the mutation). What do the researchers know exactly about CAG 36?

Ewa, Young Adult, Denmark

See our answer...
With two children will at least one of them get HD?Y6363 people shared this0 comments

Q. Theres a mother that has HD. She has 2 children, both male. Is it possible that both of them doesnt get HD and can live with there lives? Or one of them is going to get it?

Stephy, Young Adult, Puerto Rico

See our answer...
My father died at 56 without signs, could I have HD?Y5050 people shared this0 comments

Q. My father’s family have developed HD by the time they were in their thirties; however, my father died at 56 due to an accident and, until then, he never showed signs of this disease, so we believe that he didn’t inherited it. Do my brothers and I have the chance of having inherited it?

Natalia, Young Adult, Brazil

See our answer...
Do identical twins have the same HD status?Y207207 people shared this0 comments

Q. If the genetic testing for Huntington’s Disease of an identical sibling is positive does it mean that the other has it as well automatically because they have the same genes? Or does the other also have a 50:50 chance?

Susanne, Young Adult, Germany

See our answer...
Can kids be tested if their mom doesn't want itY319319 people shared this0 comments

Q. My sister was diagnosed with HD, another sister is showing symptoms but has withdrawn herself from the family… The kids are now having kids of their own and our family is struggling. Have you heard of this before and is there any way around it?

Tina, Young Adult, USA

See our answer...
I have HD, will my children have HD?Y5252 people shared this0 comments

Q. Hi..my mother is HD. I am also diagnosed. I know I have got this from my mother. My worry is that will my children also have the HD. I am planning to start my family in couple of years. Thank you

Aryan, young adult, India

See our answer...
Family history, onset and symptomsY6262 people shared this0 comments

Q. My grandma had HD and I’m not sure when she got symptoms but probably around her 60s… Is it realistic to think that, if I have the disease, it will be similar in terms of age of onset and severity as my family?

Michelle, young adult, USA

See our answer...
My dad, aunt and uncle have HD, will I?Y6363 people shared this0 comments

Q. My grandma passed away from HD and my dad, aunt and uncle all have it. What are my chances?

Cori, Young Adult, USA

See our answer...
Is HD gene on the X chromosome?Y9696 people shared this0 comments

Q. Father inherited HD from his mother. Therefore, will everyone of his female offspring inherit the HD gene due to the ‘X’ chromosome contributed by the father, making probability 100% vs. 50%?

MJ, Young Adult, USA

See our answer...
What happens in cognitive testing?Y7979 people shared this0 comments

Q. What do they do for cognitive testing they said my appointment was going to be about 4 hours im nervous but really want to know of i inherited the gene from my father.

Alex, Young Adult, USA

See our answer...
What is the physical test for HD?Y164164 people shared this0 comments

Q. I would like to know how is made the physical test that is done in the clinic to know if you have HD?

Patricia, young adult, Brazil

See our answer...
Could my symptoms be HD?Y424424 people shared this0 comments

Q. My great grandmother died of a severe neurological disease in the 1940s. She would have been around 50 at the time of her death. My grandfather never spoke much about his mother or what illness she had except to say that he had to provide for the two of them while in school. Medical records have been long since destroyed and he died fairly young of cancer, himself. My parents generation doesn’t show any signs of HD…

Is it worth being tested to rule out HD, or is it too unlikely to be the cause of my problems?

Jake, Young Adult, USA

See our answer...
Who does testing on children in California?Y147147 people shared this0 comments

Q. I live in California.. I would like to know who does testing on a young child of the age of 12 months. We are adopting my little niece but we just found out that her maternal mother had huntington’s disease. So we like to do the genetic testing just to plan the future.

Anabell, US, Young Adult

See our answer...
Does having a low gene count decrease the chances of HD?Y167167 people shared this0 comments

Q. Does having a low-Huntington gene count decrease the likelihood a child will develop HD?

Laura, Young Adult, USA

See our answer...
What can I do to help in Brazil?Y9797 people shared this0 comments

Q. My mother died at 51 with HD. My grandfather also had the disease, and my uncle has it too. I’m 29, I’ve married 6 months ago. I’ve never thought about doing the test and I intend to get pregnant through artificial insemination. However, lately, I’ve been thinking about this everyday. One of my relatives has done a surgery and had a pacemaker implanted to control the involuntary movements. I’ve never read anything about that. What do you know about this surgery? And I would also like to make myself available to help in some way.

Natalia, Young Adult, Brazil

See our answer...
Can you have IVF without testing yourself for HD?Y170170 people shared this0 comments

Q. So my partner has a 50/50 chance of having hd.. his dad and auntie have tested positive for it. however he is against having the test yet wants to start a family in the next couple of years. I dont want to start a family knowing there may be a chance my child might obtain the disease. Is there any way of making sure the child doesn’t have the gene like gentic testing or ivf? if there was we would still end up finding out if he has it

Katie, young adult, UK

See our answer...
Can 2 brothers get infected at a wide age gap?Y341341 people shared this0 comments

Q. If my uncles got HD at the age of 25-30 and my dad is 50 years old and didn’t have any symptoms so far - does it mean that he don’t have the gene at all?

Eliel, 25, Israel

See our answer...
My non-identical twin has HD, what are my chances?Y199199 people shared this0 comments

Q. I’m a dizygotic twin, I’m 27, and my brother has Huntington’s Disease (it started around the age of 18). In this situation, am I still at a 50% risk condition of having the gene or, because I’m a dizygotic twin, I have a lower or even null risk of HD?

Bruno, Young Adult, Brazil

See our answer...
My grandfather had HD, what are my chances of having it?Y171171 people shared this0 comments

Q. My grandfather had Huntington’s..I’ve also had 2 aunts pass away with with.. now have 3 cousins diagnosed with HD. My dad hasn’t been tested and as far as I can tell doesn’t show signs. What are my chances of having HD?

Lisa, young adult, USA

See our answer...
Will my CAG repeat change?Y193193 people shared this0 comments

Q. Will my CAG repeat change or stay the same?

Jessica, Young Adult, USA

See our answer...
I haven't developed JHD, has my risk of HD fallen?Y272272 people shared this0 comments

Q. If my father has HD but I have not developed JHD does that mean that the chances of me developing HD falls slightly? If so, what percentage? Thank you

Ashok, Young Adult, UK

See our answer...
PGD in ItalyY183183 people shared this0 comments

Q. Is it possible to perform PGD in Italy? Which the requirements and eventual facilities?

MG, 26, Italy

See our answer...
My memory is not as good as I was, should I test for HD?Y188188 people shared this0 comments

Q. I used to be able to retain a lot. Now as I’m growing into adulthood I’m noticing that those abilities are decreasing dramatically. Should I get tested for Huntington’s?

Brian, young adult, USA

See our answer...
If your grandmother had HD should you be tested?Y196196 people shared this0 comments

Q. If your grandmother had huntingtons disease, should you be immedialty tested after, no matter how old you are

Julia

See our answer...
How can I help keep my mum's mind active?Y108108 people shared this0 comments

Q. Hello, I am a carer for my Mother who suffers with HD and she is very reluctant to leave home. I am worried that if I don’t keep her mind active at home she will get very bored and give up. Can you help me with ideas at all? We live in a ground floor flat. Thanks

Amy-Jo, Young Adult, UK

See our answer...
Do I just have the chorea and mental symptoms?Y101101 people shared this0 comments

Q. My mother, grandmother, and 3 uncles have died from HD. My brother is 36 and has been having the symptoms for the last 5-6 years. I am 22 and I’ve known about HD for a long time since I was about 5 or 6. In the last 2-3 years my memory has gotten pretty bad as well as behavioral.

Could I be suffering from just the mental part and the chorea and other symptoms come later or is what going on with me normal? I dont feel normal like I used to

Cici, Young Adult, US

See our answer...
My mum isn't showing signs, should I get tested?Y9595 people shared this0 comments

Q. If my mom wasn’t diagnosed with Huntington’s until she was 30 when should I get tested if I’m not showing any signs of the disease right now? And if the test comes back negative when should I go and get tested again?

Katelyne, 21, USA

See our answer...
I have symptoms, should I test for HD?Y267267 people shared this0 comments

Q. Over the past few years I’ve noticed a substantial decline in my speech and movements. I do not have access to my biological father’s medical history, but I do know that HD does not run on my mom’s side. Would it be foolish of me to want to get a genetic test for HD?

Erica, 21, USA

See our answer...
Do I need symptoms to test?Y113113 people shared this0 comments

Q. My father has HD, I would like to know if I need to show symptoms to be able to do the test. Thank you.

Marina, 24, Brazil

See our answer...
I'm pregnant and 17, can I get the test?Y277277 people shared this0 comments

Q. I know that the test for Huntington’s Disease is only for over 18s but if you are pregnant at 17 and want to have the test to see if the baby would be at risk can they make an exception?

Ella, 17, England

See our answer...
Does the oldest sibling get HD?Y266266 people shared this0 comments

Q. Hi, I want to ask somethings about HD. My grandma had it and she had 3 daughters. Now my mum is suffering from HD, and she was the elder one of the 3, Has it something to do to be the elder?

Lola, Young Adult, Spain

See our answer...
Does my friend with chorea have HD?Y184184 people shared this0 comments

Q. a close family friends mother passed away from hd in her forties. about a year ago my friend had chorea like symtoms. they lasted almost 6 months. he just turned 30 and the jerking movements have completely stopped. is this common for someone with hd? he refuses to get tested and insists he doesnt have hd. i would be grateful for any feedback.

Shirley, 30, USA

See our answer...
My husband has bad symptomsY110110 people shared this0 comments

Q. My husband is an HD carrier, he is impotent, aggressive, nervous, doesn’t like to talk, after the diagnosis he is getting worse, are these symptoms normal, he is being treated in Sarah Hospital since 2013.

Regi, young adult, Brazil

See our answer...
Is HD in adolescence more severe?Y171171 people shared this0 comments

Q. I would like to know if the HD that starts in adolescence is more aggressive/severe. I have a 21 year old daughter that started the disease at 15 years old. When I compare her with other family members I think her case is much more aggressive/severe.

Sandra, 37, Brazil

See our answer...
Can symptoms develop at any time?Y130130 people shared this0 comments

Q. My mother is 48 and over the past couple years we have noticed her movements and speech seem to be off. Can the symptoms develop at any time, even if it tends to show up much earlier in our family?

Bailey, 23, USA

See our answer...
My mum is 60 without symptoms - does she have HD?Y175175 people shared this0 comments

Q. My mum is 60 now without any symptom of the disease. Can she suffer from HD? Or, Can she carry the gen and pass it on to me or to my brother?

Clara, 24, Spain

See our answer...
Living in Sri Lanka and HD resources for testingY9393 people shared this0 comments

Q. My mother had Huntington disease and she showed symptoms at her age 45. Gradually it became worst. She got paralysis at the age of 54 and after two years she died because of the disease. She suffered lot from this illness. She ate little food and she got huge weight loss. We lived in Sri Lanka and in this country this disease concerned as a rare sickness and did not give proper attention to these patients … I want to know if i diagnose this disease at this age whether it can be help to get rid from this illness. Please help me to make my mind….

Dul Shani, 21, Sri Lanka

See our answer...
How can I help my mother with diet and exercise?Y161161 people shared this0 comments

Q. Good night, this year, in July, my mother, who is 45, exhibited severe seizures, being hospitalized several times. The diagnosis was HD, which was confirmed with a genetic test. I’m the oldest daughter and I would like to receive information about eating/diet and what kind of exercise I can help her to do…

Etienne, 22, Brazil

See our answer...
Should I be concerned about my 10 year old son?Y254254 people shared this0 comments

Q. My husband (42 years) has Huntington’s disease. Since March he is unable to work. We have 2 sons (10 and 12 years). By chance I filmed my younger son during our holiday while running at the beach. He makes clear choreatic movements with hands and arms… What shall I do?

Gaby, young adult, Germany

See our answer...
Is my husband developing symptoms?Y832832 people shared this0 comments

My husband is 30 years old and has a history of HD in his family. How can I look at this behaviour, meaning, is it possible that he is starting to develop symptoms?

Ana, young adult, Brazil

See our answer...
Will a cure help people who already have symptoms?Y242242 people shared this0 comments

If a cure is found for HD, is it possible that people currently suffering will get better? Or are the effects caused by HD permanent?

Jodie, 26, UK

See our answer...
I'm looking to get tested soon but am sure I have the disease, is that common?Y150150 people shared this0 comments

Hi. I’m looking to get tested soon. I am sure I have the disease but don’t show any ‘clinical symptoms’. I understand it is normal to feel this way. I’m just wondering if there is knowledge amongst the professional community about any very very early symptoms? Is it common for the ‘at riskers’ to suffer from ‘med students syndrome’?

Neville, young adult, Australia

See our answer...
Is there anything that can help kids with the gene?Y154154 people shared this0 comments

My late husband had HD, I have 11 years old boy , is there anything which help these kids if they got the effected gene

Sara, 30, Pakistan

See our answer...
Do you have to have a parent with HD or can it just be in the family?Y448448 people shared this0 comments

Ok I know i am not a young adult but i have questions and concerns about HD. Do you have to have a parent with HD or can it just be in the family? My husband is 36 and i don’t think he has any signs but i am concern for my nephew.

Sara, 34, US

See our answer...
Is it worth the risk?Y655655 people shared this0 comments

I plan on getting tested for HD soon hopefully but at the same time I want to start a family. If I test positive I don’t want to pass it down to my children if they have the chance. Is it worth the risk?

Ashley-Marissa, young adult, US

See our answer...
I feel I have symptoms of HD, who should I talk to?Y548548 people shared this0 comments

Whom do you suggest I should approach if I’m unsure whether I have HD but I feel that I have most of the symptoms? Please guide me whether a GP would be able to help out or whether I should visit a Neurologist? Thanks.

Alison, 27, Malta

See our answer...
What kind of natural remedies can I take or things can I do to stave off HDY450450 people shared this0 comments

Hi there everyone I was wondering if I could get some advise on natural remedies and things I can do to stave off Huntingtons.

Francis, young adult, Australia

See our answer...
Questions about eating and choking and what people with HD feelY407407 people shared this0 comments

Is it normal that my mom is only 55 years old and is still eating but very little and with choking. Is it possible she will not speak at all? Is it likely this will occur soon or how long can it take?

Lorena, 24, Spain

See our answer...
My mother had huntingtons, do I?Y416416 people shared this0 comments

My mother had huntingtons and some doctors said the disease HAD to be passed…. BUT, some said that it COULD be passed…. My question is, does it HAVE to be passed or what?

Shanda

See our answer...
I don't want to get tested - what are the options for having children?Y345345 people shared this0 comments

My great-grandmother had HD and I’m thinking about having children in the future. Am I being too cautious/paranoid about it all as my risk is low? Secondly, do you think I would be allowed to adopt a baby with my partner given my at-risk status?

Amy

See our answer...
How can I support my friend whose mom has HD?Y242242 people shared this0 comments

I have a friend whose mom has Huntington’s disease and he has a 50% that one day he will one day develop the disease as well. How can I help him stay calm?

Marilyn

See our answer...
What can I do to help with spilling things and falling?Y209209 people shared this0 comments

I recently tested positive for HD. I was wondering if any one has any ideas about how to help with spilling things, and falling?

Britt

See our answer...
Options for having childrenY310310 people shared this0 comments

I was wanting to know how the natural birth is meant to happen?

Lara

See our answer...
If no one in my family has been tested can I get tested?Y214214 people shared this0 comments

If no one in my family has been tested can I get tested? Also would you want to be the one to tell your mother and grandfather they both DEFINITLY have Huntington’s?

Jeff

See our answer...
I've been showing early symptoms of HD, should I get tested?Y385385 people shared this0 comments

I’ve been showing early symptoms of HD, should I get tested?

Brittany

See our answer...
HD and attentionY266266 people shared this0 comments

My father suffers from HD and he always tells us to shh but then he talks away to us.

Ash

See our answer...
Does everyone with the gene get symptoms?Y465465 people shared this0 comments

Even though you are positive for the gene, does that mean you are for sure going to develope symptoms?

Kierstan

See our answer...
Multiple sclerosis and Huntington's diseaseY362362 people shared this0 comments

I have multiple sclerosis and the HD gene, how do I know if the HD has started?

Antionette

See our answer...
Repeat count and symptomsY170170 people shared this0 comments

Does my repeat count affect when I’ll get HD symptoms?

Nancy

See our answer...
Is there any way to slow down HD?Y109109 people shared this0 comments

My mother has HD, along with one of my uncles and one of my aunts. My grandfather also had HD but he has passed on. I am unsure about having children because of this disease, and I am also unsure if i ever want to get tested, simply becuase of the emotional scars I have already undergone. So my question is this, if i were to have HD, what can i do RIGHT NOW in my life to help slow down the effects of this disease?

Maria, 21, USA

See our answer...
What are our options for starting a family?Y280280 people shared this0 comments

My partner and I are thinking of starting a family, but I don’t want to have any kids at risk of HD. What are our options? Where should we go for help?

Lucy, 26, England

See our answer...
My grandad has HD - am I at risk?Y12861286 people shared this0 comments

I have just found out about Huntington’s disease being in my family, my granddad has been diagnosed with it at the age of 71. My mom doesn’t know if she has it yet. Am I at risk? If so, can I get tested?

James, 21, USA

See our answer...
The panel of expertsKTYPJP36463646 people shared this0 comments

Who are the experts? Find out about our panel of experts here!

See our answer...