Select your wallpaper: Select your wallpaper: Sign up to save your choice Close
Home Support Store Donate
Sign in or join HDYO Wallpaper

Terms Privacy Search Sitemap Contact Us
Store Donate
Huntington's Disease Youth Organization

I've been showing early symptoms of HD, should I get tested?

HDYO has more information about HD available for young people, parents and professionals on our site:

Q. I have been showing early symptoms of HD. I have had several people in my family that we’re diagnosed, or passed away from HD.  Should I get tested? And, how do I do that?

Brittany, 24, USA

Ask a question

A. Dear Brittany,

If you think you might have early symptoms of HD then I think the first step should be to see a doctor in your state who has expertise in HD. They will be able to tell if you have symptoms & arrange a gene test. 

If you are not sure who your local HD specialist is then I’d contact the USA HD association for advice.

I see lots of young people at risk of HD who are concerned that they have symptoms of HD. Sadly some do, but many don’t. 

There are a few conditions that mimic HD, like an overactive thyroid, that might need to be excluded. Very often a young person who thinks he or she might have HD has been “symptom watching” and has persuaded him/herself that they have HD when they don’t. 

A gene test will tell you if you have  the gene, but it won’t tell you if have symptoms. Only a specialist who knows about HD can do that. Also, if you do have HD then seeing professionals who understand the condition & who can help you will be in your interests,

All the best for the future,


Last updated: October 13, 2012 14:09