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Huntington's Disease Youth Organization

I'm pregnant and 17, can I get the test?

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Q. I know that the test for Huntington’s Disease is only for over 18s but if you are pregnant at 17 and want to have the test to see if the baby would be at risk can they make an exception?

Ella, 17, England

A. Hi Ella,

Thank you for getting in touch with HDYO about this difficult topic. To answer your questions somewhat, the rule that states you must be 18 to test is actually more of a guideline. It can be done so long as the individual is deemed mature enough to handle the process and result. The situation you describe is not as straight-forward though because of the pregnancy. If you are in the situation you describe I highly recommend contacting your local genetics department and requesting immediate referral to them. This can be done by searching for their contact details, or going to your local GP as soon as possible and asking to be referred to the genetics team.

If you are not sure how to do either of these approaches then you can contact me confidentially and we will help you to make contact with the genetics team. My email is matt@hdyo.org

Thank you for sending in your question

Matt