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Huntington's Disease Youth Organization

My mum isn't showing signs, should I get tested?

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Q. If my mom wasn’t diagnosed with Huntington’s until she was 30 when should I get tested if I’m not showing any signs of the disease right now? And if the test comes back negative when should I go and get tested again?

Katelyne, 21, USA

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A. Hi Katelyne,

Thanks for your question. The HD test is not something that changes. You will have the same result regardless of when and how many times you take the test. When you take the test is up to you and this is about when and if you want to know your genetic status. It might be a good idea to speak to a genetic counsellor locally who could explain this in more detail.

Best wishes

Hugh Rickards