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Huntington's Disease Youth Organization

If your grandmother had HD should you be tested?

HDYO has more information about HD available for young people, parents and professionals on our site:

Q. If your grandmother had huntingtons disease, should you be immedialty tested after, no matter how old you are


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A. No, there is no need for anyone to have testing immediately. It is useful though, for members of the family to be offered genetic counselling so that they can access information and support. This also involves discussion of available options, including testing options, if that is something someone is interested in. I’m not sure where you live Julia, but if you (or your parents) would like help accessing a genetics centre, please let us know.

Rhona Macleod

Last updated: May 13, 2014 10:24