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HDYO Support Need support? Click 'Find out more...' to send us a message. We offer support to young people around the world impacted by HD. Find out more...
North American Youth Camp 'We are so excited to offer a HD Youth Camp for North American young people impacted by HD, completely free for those who attend! To learn more about the camp click the link below! Find out more...

What is the HDYO?

The Huntington's Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington's disease.

Learn more on our about us page...

HDYO Blog

Matt’s Blog – A family in need 3 days ago
CHDI Therapeutics Conference Update 26 days ago
Me & My Youth Worker by Chris Brown about 1 month ago
6 Years of HDYO by Matt Ellison 2 months ago
Find Your Purpose – Seth Rotberg 3 months ago

HDYO news

HDYO Facebook Group 5 months ago
HDYO Happenings - Fall 2017 7 months ago
University of Leicester HD well-being survey 9 months ago
HDYO Happenings - Spring 2017 12 months ago

Recent forum posts

Writing a screenplay about HD 2 months ago
Here's my story 5 months ago
Tested positive- looking to meet people 7 months ago
I would just like to talk with someone, anyone. 8 months ago
Anxiety about possible symptoms 8 months ago
HDYO Newby Introductions 12 months ago
Seeking advice, and understanding. about 1 year ago
Experiences of living in a family with HD about 1 year ago
new on the forum about 1 year ago

Recent updates

HDYO US Youth Service 3 months ago
What Gives Your Hope for HD? 12 months ago
Living with Juvenile Huntington's Disease about 1 year ago
Aus and NZ HD Youth Camp 2017 about 1 year ago