What is the HDYO?

The Huntington's Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington's disease.

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HDYO Staying Connected Program

We are proud to now offer a new online program providing a range of options for young people and families in the HD community to use for support, connect with others and to have fun in the process.

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What is HD Video

Learn about what HD is with this video

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The HD Gene

Get educated on the genetics of HD here

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Ask a Question Send us your questions for our panel of experts to answer. Our panel of experts consists of professionals from various fields, to help cover a vast range of potential questions.

Kids Teens Young adults JHD Friends

HDYO Support Need support? Click 'Find out more...' to send us a message. We offer support to young people around the world impacted by HD.

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What is HD? Find out about Huntington's Disease

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HDYO Land HDYO Land is an interactive, colourful and fun program aimed to help children learn about Huntington’s disease (HD). HDYO Land is a great place for children to safely learn about HD.

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HDYO Heroes We invite you to join the HDYO Heroes Program and contribute your time, energy or creativity in a way that works for you to help spread awareness of HD!

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HDYO's Young Adult Congress Postponed It is with regret that we at HDYO have to postpone our inaugural Young Adult Congress.

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Facebook Group

Are you aware that we have a private FB group? A safe place for young people impacted by HD to share experiences with others impacted by HD. Join and connect with others.

Join our Facebook Group!