HDYO's Young Adult Congress Postponed It is with regret that we at HDYO have to postpone our inaugural Young Adult Congress. Find out more...
HDYO Coronavirus update Read more about Coronavirus and Huntington's disease. Find out more...
HDYO Support Need support? Click 'Find out more...' to send us a message. We offer support to young people around the world impacted by HD. Find out more...
Ask a Question Send us your questions for our panel of experts to answer. Our panel of experts consists of professionals from various fields, to help cover a vast range of potential questions.
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What is the HDYO?

The Huntington's Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington's disease.

Learn more on our about us page...

HDYO Blog

Getting through the holidays while Grieving – Chandler Swope over 1 year ago
EHDN Conference over 1 year ago
Brayan’s Story – Peru almost 2 years ago
EXCITING NEWS FROM ROCHE almost 2 years ago
Find Your HD Platform -BJ Viau (Volunteer Board Chairman) almost 2 years ago

HDYO news

HDYO’s International Young Adult Congress Postponed 3 months ago
Scholarships for HDYO Intl Young Adult Congress 9 months ago
HDYO Intl Young Adult Congress – Registration now open 9 months ago
HDYO Inaugural Young Adult Congress in May 2020 announced about 2 years ago

More news...

Facebook Group

Are you aware that we have a private FB group? A safe place for young people impacted by HD to share experiences with others impacted by HD. Join and connect with others.

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Recent updates

Coronavirus 2 months ago
HDYO’s International Young Adult Congress Postponed 3 months ago
Things to consider when adopting a child at risk of HD 5 months ago
Planning for end of life 6 months ago

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HDYO Blog

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