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HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us?

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Home Language and Accessibility What is HD? New to HD? Find Resources Research Ask for Help About HDYO News Videos PDF Resources Join Mailing List Kids Teens Young Adults Parents and Family JoHD Friends Professionals DONATE! Privacy Contact Us

HDYO Releases New Survey!

January 22, 2024

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

We Need YOU!

We already know some of the barriers of participating in research, like burdens with work, family, etc. This isn’t replicating those findings, but it is diving deeper in feelings and knowledge around different research initiatives. We want to use this information to enhance educational initiatives for HDYO and other organizations to better educate and empower young people and community members to about research and understand how to get involved.

Learn More

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids Teens Young Adults Parents and Family JoHD Friends Professionals